Showing posts with label Asperger syndrome. Show all posts
Showing posts with label Asperger syndrome. Show all posts

Paying for 'Friendship'

When an autistic adult mentioned to me that he was spending a lot of time and money in cam chats, "tipping" his virtual friends, this raised a few questions for me about how much this was connected to the isolation he felt as a "very lonely Aspie" and how much is a general shift in online access to such "adult entertainment" options.

If you aren't familiar with the cam world, you can read the following:


The more questions I asked of Lonely Aspie, the more I recognized that his problem was less about the adult nature of the online setting and more about isolation in general.

Before finding the "cam girls" online, he was addicted to online games. He would spend hours and hours, and a fair amount of money, fighting virtual monsters. He moved from fantasy games to war games. Apparently, you can buy virtual weapons, armor, and other extras — with very real money.

"My friendships are all online," he explained. "The games let me have something in common with people. And I'm good at them."

I was reminded of the book Finding Kansas, by Aaron Likens. I wrote about Aaron Likens' book several times [see http://autistic-writer.blogspot.com/2012/05/finding-myself-in-finding-kansas.html]. Aaron Likens found meaning, some sense of purpose, in being the best at a video game. He was part of a "community" of gamers. Virtual connections, via games, are common — not merely among autistics, either. We know that the game industry rivals Hollywood. So, while autistics might be obsessed with a game, maybe that's not so unique anymore.

I fear that people are losing themselves online.

I've spent a lot of time online thanks to life-long insomnia. At night, I'll keep chat windows open and I'll use Internet Relay Chat to discuss everything from literature to programming. But, the online "friends" don't seem the same to me as the people I meet face-to-face. Over the last few years, I wasn't online much because I was busy moving and teaching. I didn't even realize that Yahoo, AOL, MySpace, and other chat room services had ceased operations. Obviously, I wasn't compelled to stay in touch with the virtual "friends" I had in chat rooms — they were mere acquaintances, not meaningful connections.

But for Lonely Aspie, he insists that the online connections are his only meaningful emotional connections.

If he played online games a few hours a week, visited cam sites a few times a month, then I would understand. Everything in moderation, I don't see a reason to worry. But these are expensive habits, without much promise for real emotional connections. Or maybe I'm wrong? Lots of people play games online, spending real money on custom computers, gaming keyboards, headsets, and more. Gamers take their hobby seriously, just like golfers, tennis players, and cyclists. But, I don't see the benefits to gaming that you get from being active.

What about the free options for social connections online?

I asked if he realized there are still free chat rooms, on IRC, where he could talk about "meaningful" topics? The chats aren't busy, but they aren't entirely abandoned. There are also chat rooms on some autism communities. Maybe he could try the forums, which aren't live but are still social connections.

No, he felt something "real" as part of a team in a virtual war zone. That was something other chats didn't offer. On various games, he was spending a large portion of his meager income. And then he found the "cam girls." What money was left after the video games went to the cam girls, buying "friendship" online.

I've met autistics obsessed with how many "friends" they have on Facebook, LinkedIn, and other social networks. They want to be popular, to be like everyone else. At least those are free websites, until you start buying tokens within various online games… then the sites aren't free anymore.

How much was Lonely Aspie spending on the cam girls? About $200 a week. I know I made an audible gasp. I probably said something rude, too, about how foolish that was. That's $800 to $900 a month! Do you realize what most of us can do with $800? I have a lot of things I'd rather do with $800. Heck, I don't spend that much on my "real" friends, mainly because I'm not a millionaire.

I understand wanting to treat people nicely. I feel compelled to pay for meals when I ask to meet someone at a cafe or coffee shop. I was taught that you pay for meals, to be polite. But food and drinks are about the only thing I understand paying for when you gather socially. Even that is more than I really should spend, as my wife reminds me.

Paying for food? That's a long-standing social tradition. Randomly tossing money at a virtual "friend" for no reason? That's hard for me to understand.

"The women are like my therapist. I tip them for listening to me," Lonely Aspie defended himself.

I suppose a therapist could cost $200 a week or more. But your therapist isn't sitting topless on camera for 100 viewers. Admit it, you're paying to see the woman be cute. The more you tip, the more likely she is to remove her clothes on cam. That's what you want. That's what you don't get from World of Warcraft or Gears of War or whatever it is you play online.

"Yeah, I like seeing them naked. I've never had a girlfriend and I like feeling like I might have one, someday."

You are not going to get a girlfriend, a real relationship, hanging out in cam rooms.

If you enjoy the cam rooms, that's your business, but you won't be building a real friendship with someone who will be in your life for years to come. Yes, men and women like to believe online connections are that deep, but few (very, very few) online connections reach that level. Generally, the online is ephemeral, a way to deal with boredom.

Imagine taking that same $200 a month to join a local club or organization. If you spent $200 on "real" activities, you might meet people with similar interests and make friends. While $200 doesn't buy a lot of entertainment in today's world, it does buy "cheap seat" tickets to a sporting event and some food. It buys tickets to theatrical productions. It buys passes to state and national parks. It buys sports equipment. You can do things and meet real people for $200 a week!

"But what about the sex things? I really want those, too!"

Sorry, but watching a woman touch herself on a camera is not sex. It isn't voyeurism, since she is inviting you (for a fee) to watch, but it isn't a real, meaningful connection.

If you want "the sex things" in life, you need to connect to a real person. Can you meet someone online? Yes, via a dating or social networking site, you can. Could you have a one-in-a-million chance of a virtual "Pretty Woman" connection? Maybe, but that is a one-in-a-million thing. The women Lonely Aspie is "tipping" online are in business. They are trying to pay bills and earn extra money. I doubt any of them are on cam hoping to find a meaningful connection.

I asked Lonely Aspie if he had tried the online dating sites. He had. No dates. The virtual "meetings" tended to end abruptly. I asked what he was telling the women.

"I want a girlfriend and I really want to have sex."

It was pretty clear why the online dating effort wasn't working. I'm sure women read something like that and are creeped out by the directness.

I mentioned that people like to form friendships, before having sex.

"They don't on television or in movies. People like sex. Did you know you can have sex in Second Life? People go there for the sex."

I reminded him, just like watching someone on camera, watching avatars have sex wasn't the same as holding the hand of a real person.

"Sure it is, or people wouldn't do it. I built a house in Second Life because women want you to own a house. Want to see it?"

I was at a loss. His friendships and his "relationships" aren't real. They just aren't, at least not in my view. He argued that his friends were as real as mine. "And you don't have that many followers or friends," he pointed out to me. "I have 700 friends on Facebook and over 1000 Twitter followers. You don't."

I was at a complete loss for words. Yet, because I can't keep quiet when I should, I reiterated my belief that to make real connections, you have to leave the virtual world.

Lonely Aspie didn't like my advice. He didn't want to meet strangers at concerts, parks, or elsewhere. He didn't want to use Meetup.com or Facebook to find groups with interests similar to his. He actively resisted my suggestions, and seemed set on spending his money on games and cam girls.

Someone is getting rich off his need to have "friends" and that's sad. But, I gave the best advice I could. Maybe I'm not understanding the situation? Maybe there's something I am missing?

Tell Us What's Great about Your Autism! Yeah, right…

"Tell us what's great about your autism! What's your special gift or talent? What's your superpower?"

Really? Clearly the sender (probably using an automated mailing list) isn't familiar with my blog, public statements, or other writings. I don't have superpowers, no special gifts, and no unusual talents that I would attribute only or primarily to my autistic traits. Some talents might be associated with autistic traits, but they might also be tangentially related to genius, effort, parental upbringing, or who knows what else.

I've written repeatedly that I do not consider autism a gift. Not even close. I don't buy into the whole "Being disabled forced me to be better!" sloganeering. If you had to be injured to learn to be nice to other people, or an injury led you to some belief in a Supreme Purpose to life, that's fine. But my autistic traits are generally a pain to live with, literally and figuratively.

Tell you what's great about my autism? It doesn't impair my daily life as much as autism and other disabilities might. Autism is something I struggle to overcome and work around, not something I embrace like a badge of honor. I am not ashamed of saying that what makes me different from many self-advocates is that I'll loudly proclaim I wish I could be more "normal" in ways that would improve my life and make the lives of others easier. That's not disliking who I am either, it is disliking the seizures, migraines, ringing in my ears, and other daily frustrations.

I've written so often on this, that I'll resort to quoting myself:
I don't deny my limits. I know I cannot do some things.

There are definitely physical impairments I have that might not apply universally. To assume I am only writing of my unique neurology is a mistake. I am physically disabled; these are mild limits and do not affect my daily existence.

The neurological differences I face are not a "gift" most days.

In "neuro-diversity" communities, there are those who deny autism is anything more than a difference. These are a minority, but a vocal minority nonetheless. The logic of these activists is to challenge and resist public misconceptions of autism, especially within the high-functioning / Asperger's syndrome subcategories.

It is definitely a disability to be unable to handle mass transit, many public spaces, bright lights, loud sounds, strong smells, and so on. It is not a mere "difference" to be stuck at home many days, unable to tolerate the sensory overload of normal existence.

Yes, I am different, but I'm also disabled.
— from http://autistic-writer.blogspot.com/2010/06/different-vs-disabled.html
As I've explained, "The Autistic Me" is only a portion of me — a reference to the annoyances of autism and the frustration that accompanies some of the traits. I would rather be known for my creative writing, teaching, and academic scholarship. Being known for being autistic? No thanks. I don't want special treatment; don't let me use "autism" as an excuse for any failings that I can overcome.

Let other people embrace and celebrate autism. I'm not rejecting it, but I'm always working to understand, compensate, and overcome. Success is not built on surrendering to or accepting your weaknesses. Some people, including myself, simply have to work harder — much harder — at some aspects of daily life.
1. I am a "success" neither because of nor in spite of my "autistic" traits. I am a success because my wife, parents, extended family, and friends help me and I try to help them when I can. Success is a team effort, whether you're "normal" or not. Plus, no one is normal.

2. Autism does not define what I do for a living as a writer or teacher. I'm not in charge of anything autism-related at work, and the freelance writing seldom addresses autism or other disabilities.

3. Autism is a "disability" not a blessing or some special gift. So what? The list of human "impairments" is long, and almost everyone begins life and ends life with some level of impairment. Find ways to adapt, not ways to surrender.

4. Stereotypes of autism are unhelpful. The savant mythology, in particular, follows many of the college students I meet. They have to explain to peers, and some instructors, that autism is not synonymous with "Rain Man." Unfortunately, the media love unusual stories, so the "freaks and geeks" become the template for autism.
— from http://autistic-writer.blogspot.com/2011/11/autistics-speaking-day.html
As I have also written, I cannot celebrate "autism" because the label includes serious, horrible, physical, intellectual, and emotional impairments. When you watch a non-verbal teenager pulling out hair, biting herself, you can't celebrate that. I recently watched through the window of a steel door as a young adult rocked, screamed, and spit. I asked what he had done to be so punished. I certainly do not support isolation, restraints, or any harsh interventions. The medical supervisor told me the young man had bitten the face of another resident. I can't even begin to describe the horror and disgust I felt.

What might have caused someone to bite another person's face? Was there a misunderstanding? A sensory overload? An urge to communicate, but not the means? I have no idea, and I don't believe the facility staff had a clue, either.

So, what's great about my autism is that it isn't the autism of someone in a medical facility. I am able to speak up and ask questions and try to help that person and others. Celebrating autism isn't going to help, though. Understanding it better might.

I wish nobody had to be secured in an isolated room. Ever. There has to be a better way to help people. But is that way through "acceptance" or something else? I happen to believe the answers will be found in medical research. Yet, even calling for more research sometimes angers a small segment of the activist community.

Nothing's great about autism. It simply is a label for some of my traits. Let others celebrate and call autism "great." I'll stick to calling it a part of my existence. The traits have shaped my life, and rarely for the better.

Autism and Asperger's syndrome may be biologically different, study finds - Los Angeles LA | Examiner.com

My wife and I have long thought "autism" and "Asperger's Syndrome" were distinct, based on observing, meeting, and interviewing people with diagnoses within the various autism spectrum categories. There is research finding high-fucntioning autistics and Asperger's are distinct, as well, which I have cited in my own research of learning patterns and accommodation needs.
Autism and Asperger's syndrome may be biologically different, study finds - Los Angeles LA | Examiner.com: There were some similarities in the brain patterns of the Asperger's and ASD participants, namely low connectivity in the region of the brain associated with language. However, the scientists noted stronger connectivity in regions of the brain than both the ASD and control groups.
My diagnosis was high-fucntioning autism (HFA) which is not an official DSM-IV category, but is used by many clinicians and researchers. Often, the distinctions made by clinicians deal with language skills and other developmental delays.

The personality differences I notice might be noticeable to clinicians. I've found AS students and young adults to be more prone to depression, for example, because they have a greater desire for social interactions. I also find that students with AS have more conflicts in the classroom, while HFA students seem to avoid conflict. These are only generalizations, but they might reflect neurological differences. It would be interesting for researchers to pursue these questions.

I have cited some studies finding differences in my academic papers and I am convinced the differences are quite real and distinct.

Ozonoff, S., Rogers, S. J. and Pennington, B. F. (1991), Asperger's Syndrome: Evidence of an Empirical Distinction from High-Functioning Autism. Journal of Child Psychology and Psychiatry, 32: 1107–1122. doi: 10.1111/j.1469-7610.1991.tb00352.x

Howlin, P. (2003), Outcome in High-Functioning Adults with Autism with and Without Early Language Delays: Implications for the Differentiation Between Autism and Asperger Syndrome. Journal of Autism and Developmental Disorders, 0162-3257. v 33 n.1. doi: 10.1023/A:1022270118899

Relationship Questions: Autism from Friendships to Romance

English: Romance icon
English: Romance icon (Photo credit: Wikipedia)
The Autism Society conference, recently concluded in Pittsburgh, PA. During the conference, I appeared on a panel that dealt with general life issues. After the panel, parents and young adults approached me with questions. Every question, without exception, dealt with relationships. Nothing about education, careers, or life skills. No, every question was about relationships, from friendships to dating and beyond.

Though a great number of books have now appeared, including several on dating, love, and sexuality, there seems to be an endless demand for answers. If not answers, families and individuals at least want to discuss these issues.

As I've written before, I'm not sure what I can contribute to these discussions. I still believe some basic guides to dating and relationships are better than the "autistic" guides. Relationships are complex for everyone, or those bookshelves wouldn't be packed in every bookstore and there wouldn't be thousands of websites dedicated to love and romance.

One of my colleagues pinpointed a communication and understanding challenge we need to address among many young adults with ASDs: confusing sex with love. While plenty of young adults conflate love, infatuation, and sex, with some of the autistic students we meet have much deeper confusion.

I've had young men with Asperger's Syndrome tell me, bluntly, "I want a girlfriend so I can have sex."

That "dating = sex" equivalency indicates far more than a little communication problem. I've met too many young autistic people with this confused notion of dating. There's no understanding of the relationship aspects of dating and intimacy. Consider the following composite discussion, based on my own experiences and those of two other colleagues working with autistic college students:
Mentor: What do you want in a date?

Student: It should lead to sex. Everyone wants sex.

M: But what about the other aspects of dating?

S: Kissing? Touching?

M: No, the friendship, companionship, and romance.

S: But I want sex. I have friends.

M: Someone you date is going to want to be friends. Dating means doing things you like together.

S: Maybe she'll like sex.
You might imagine that's a parody, but it isn't. The direct nature of many autistics means they say exactly what they mean. If the goal of dating is sex, that's what the autistic student will say. I've met young men "on a mission" — focused entirely on having sex, because that's what they want.

One student compared it to his video game obsession. He has to complete every game he buys, even if he decides he doesn't like the game. You never quit playing until you're done, he has explained to me. I've asked why he doesn't just return the game and find something he likes. "My father said quitters are losers." Somewhere along the way, this young man internalized this parental advice into a personal law.

He said movies, television, and friends (though I'm not clear on how close these friends were to him), taught him that dating is sex. "Don't you know that's why people date?" he asked me, incredulously.

I'm not sure a book on autism and relationships can explore all the variation of such single-mindedness. I've met young women sure that "sex = love" meant they had to have sex to keep a boyfriend. The boyfriends might have been using these young women, but the women lacked the ability to determine if this was the case. As one young woman told me, "He is my boyfriend, and I want a boyfriend."

As you can tell from these examples, the issues of autism and relationships are difficult to address. They are individual, not easily generalized. Some autistics don't care about sexuality, while others are obsessed. The range of needs and desires are likely the same as in the general population, but there are extra challenges related to sensory sensitivity, concrete thinking, and social skills.

If you have questions, you can post them to the blog and I'll try to answer in future posts. I'm also considering working with a colleague to develop a better relationship guide than those we've found already in print. I believe it will help if a woman (my colleague) and a man (me), research and write on these matters so we can adequately address the range of issues.
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